Unless You’ve Cured It…

My church is big into being healthy. (Kinda) The serious Advevtists prefer the use of natural remedies over drugs, which makes sense given drugs can damage and kill and if used properly, natural remedies are safe.

Except they aren’t always effective. Never more potent than in the messages of an adoptive mom of seven who told me she regretted having tried natural treatment when she first heard she had breast cancer. It was treatable. Stage 1. But she went natural and natural failed her. By the time she realised that all she had done was to give the cancer a chance to speed through her body, it was terminal. She was dying.

She died. And a second of her adopted daughters went on to die by suicide.

I saw the other end. Many tumors throughout my niece’s body as she has the scan. The screen lit up as she just oblivious to the danger. Stage 4 neuroblastoma. Terribly dangerous childhood cancer. Other children lost their battle. She lived. Infertile probably. And shorter than she would have been. But, alive. She can leave a positive mark on this planet.

And that’s the essence of where I am. I was your carob- eating, no sugar, vegan friend. But it didn’t stop AS raging on through my body. I tried everything, not knowing there was nothing. No cure, though it can go into remission (ie. Dormant) for a while. I want to leave a positive mark on my children, specifically my younger ones. My older two will remember my teachings . My younger four, nope. They still need a present mom.

Don’t tell me to use castor oil packs when you have no clue what disease I have. Don’t send me to videos of a woman who has never had my disease, nor treated my disease. Don’t give me unsolicited advice and remedies. I am the expert on my disease…

Give me a hug. Ask to clean my house. Baby sit. Check on me. Research the disease.

The arthritis has increased in my jaw. I wasn’t able to open and chew properly when I tried to eat grapes yesterday evening. Shooting pain wakes me at night. You bet I want drugs. Effective drugs. I owe it to my children.

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