The minors are major because the majors might never happen. Today’s minor is her NOSE. Unlike her siblings who can blow their own nose, unlike her twin who can also sniff too, our girl is just stuck with mucus flowing down her nose. She doesn’t articulate or show that it needed to be wiped so I don’t always catch it.
During the week, I bought a Baby Vac from Dis Chem to try remove mucus from her nose, but she totally refused for big brother to do it. So I was just trying my luck when I did it this morning. It’s meant to be attached to a vacuum cleaner – don’t know how exactly-and then turned on to suck the gunk out the child’s nose. Autistics and loud noises are not friends unless it’s their own mouths making the noise, so that is not an option. Other nasal aspirators tell the caregiver to suck so..I did. Sprayed the saline solution, inserted the nozzle into her nostril and she allowed me to suck mucus from her one unblocked nostril!!! I was so excited that she had ALLOWED me! Not even all typical children want things up their noses. Not only was she ok with the and the feeling of the sucking, she even tried to put it back into her nose herself!
I’m so proud of her for letting me! For being able to handle it. Something new, something weird… It’s the little things that keep me going!
Their father hasn’t been here since Wednesday and he’s gone off to church, so I will act as my own nurse, and keep nursing the children who are still all sick though not too bad. The wound check and dressing change was interesting. The nurse has never seen a lipoma in the area mine was in. But she also made me realise that recovery won’t be that quick. The added reason is also that we cut and pulled and twisted out right by my bone and bone does not like being bothered. I am meant to rinse with salt water- forgot to do that today- and then put antibiotic ointment on and cover it back up. The pain, too, should be significant so the suggested strong anti inflammatories. She wasn’t happy I wasn’t given any by the actual surgeon. And keep my foot elevated above my heart.
Anyone who has children knows that children do not follow protocol. Mom and bed rest do not exist in their vocabulary. And so, I’ll half nurse myself, and half nurse them. Kinda like my AS life ANYWAY.
I do appreciate the concern and care from afar. Vi checked on my early in the morning. That means a LOT guys. When you need a caregiver but you have to be others’ caregiver, it is extremely lonely. In the space of my topping this, I’ve had four interruptions that required me to stand because Twin B wants stuff that I’m hiding in my room because other sibling eats it all.
I will be thankful for the little Sabbath blessings. The child who allowed me to give her a bit of relief..and the helper who texted to find out how I am today. Besides the pain, I’m sleepy. I sleep even less now due to the nerve pain in the leg and foot, I am sleepy! Falling asleep as I edit the children’s nature lesson while knowing even when I’m done, I won’t be able to take a nap. Ankylosing spondylitis is cruel. Weird benign tumours that keep appearing, are weird. I need some spoiling, some “You should rest. Just send a message if there’s anything you want us to do.” VI’s instructions to me during the week.❤️
I truly appreciate every silver lining blessing 🙏🏾 What has brightened YOUR (Sabbath) day?
They said I should write a book 