Your Brother’s Keeper

I didn’t know I could still be shocked by people till yesterday. There’s a lady who says they are Christian and claims to belong to our denomination, but puts online, videos and photos that are extremely..not what we have learnt. Tight yoga pants, exercise bras, cleavage, close ups, squats. Let me share a photo to illustrate.

I don’t have a single non Adventist friend who posts any photos this naked. They don’t even post photos of themselves at the beach or in the pool! So to see a so-called SDA from my own congregation do it, is jarring. I do not aim to condemn women who walk around in public like this, but I do have to state very clearly that when Adam and Eve walked around in fig leaves, God gave them coats (robes). And modesty is enjoined also in the New Testament. And what will God give us in heaven? Long ROBES. Would she go to church like this? And our church in particular, has been taught that this nakedness is not godly.

So yes, I myself did once say something to the naked lady. I am my sister’s keeper. If I would want to be told when doing wrong so I can be a good influence, then I know God wants me to help my sisters to be a good influence too. But it was about a photo on a different medium to the public one. And it didn’t change anything.

Someone else then took it upon themselves to try upon seeing the public videos and photos and praises to God while in this virtually baked (for us) state. Can you imagine a Muslim sharing video after video in dressed like this? Imagine what her fellow Muslimahs would say! Or think. Or feel. So, in disappointment or shock, or dismay, someone from a different congregation but from our denomination wrote a message privately and part of it appeared on the public platform, shared by the naked lady.

And this is where I lost even more faith in people. I know the lady who wrote the message. If you worship at our congregation, you will all know the lady, because the naked lady shared some message in which the concerned sister stated that they visited our church sometime last year. And there’s only one other person in my world who would ever VOICE their concern. Not our church elders or deacons or deaconesses, but this sister who doesn’t worship with us.

So, this naked sister put up a caption to go with the private message received, which totally broke my heart. Again, I know the lady who wrote to her in concern, asking if she realised that she was naked and not conforming to modest standards she knew our congregation had been taught. I know her. This naked lady doesn’t know her except for having met during that visit, and from MY statuses. And you can be sure that I don’t share any hypocrisy on my statuses. What you see is real. And I’ve spent time with the concerned sister- together physically and texting weekly. I’ve seen another letter she sent. I know her heart. (I’ll share it in the narc family series) I know she truly wants God to be glorified by those who use His name. I know everything, her private struggles against sin.

So for the naked lady to call her “holy” (you can imagine the mocking tone that is meant and accuse her of “judging” (Love how it’s never about caring about one’s salvation. These people are always being judged.🙄) There was rambling about how she is a sinner so it’s ok for her to be naked in public (Huh!? Make that make sense!)

What I hated was that it was put up to defend what we all know is indecent for someone who has joined a congregation in which THIS below, was taught. And the worst thing is that an elder’s wife commented saying they know the person who sent the concerned message. No rebuke, no “Hmm, interesting points.” That in itself says a lot.

I don’t use that platform except to search for info for my children in the groups I’m in, or for AS info. So I hardly go on there. But that doesn’t matter. It’s still very public so this is my public response.

💔

The end.

Still Keeping It Real

I don’t thank Him EVERY day. Today, I’m out of options and solutions and hope. Today, I am done. I am tired. I am sad. Today, I am fearful, anxious, worn and weary. Today, I am not feeling anything close to thankful, only desperate.

Truth is, it CAN be worse. But, my goodness, it could be better too! And so today, I will recognise that acknowledging that things could be easier is not wrong. Asking God why He won’t make any aspect easier is a very fair question.

There will be days when we just sink. Distressed, upset, faking the smile that adorns our faces. Patient when feeling impatient with God. Where is the help You promised? Where is the strength You said you’d provide for each day? Because right now, today…I am weak.

I honestly despised the light, trivial, thoughtless happy new year messages I received this year. It was like the sender put no through into it at all. How can this be a great year when none of my years have ever been great, pray tell? How can I be happy – the way it’s meant in that phrase- when every day is painful? Physically and emotionally?

I’m also mindful of those who didn’t send such light, pithy messages. The ones who wished I “get better”…Umm, I have an incurable disease. Keep your miracle hopes to yourself . I know they didn’t mean, “I hope this year brings treatment that brings relief.” I know they actually have no idea what AS and her friends have done to me and continue to do to me. Just like the very same people have no cooking clue how hectic my parenting and educating journey is.

I don’t need messages, I need help. And I don’t know where to find it.

I need affordable special needs educators for all three of my younger children. There aren’t any.

I need my mommy dragging non speaking angel to stop dragging me and stop seeing food when she sees me. It gets in the way of our ‘learning’ and our play and my chores and my interactions with the other kiddies. Will it ever happen?

I need to figure out how to help my middle two who it turns out have words, but have no idea what the words mean. How do you even communicate when you have to ask them to re-phrase just in case what they are passing on isn’t what they intend to share?

Where is the help? I wish we were living in my book. Lol. There’s a foster book I was reading based in the UK . The foster child got the child one on one help via a teaching assistant or aide that sat through each lesson with the child and helped that one child. Ha! What are the chances HERE? That would definitely be something I’d use if I were there. (And a foster mom. I don’t know if the State provides the services to normal families.)

My body pain is increasing. I feel sick – nausea etc (Finished my antibiotics tests and REFUSE to take more!) I’m done . I want to sleep. I want to rest. I want to relax.

While I wait for that opportunity. I’ll rejoice in having hung half the laundry. It could have been none of it. I’ll be glad I did something educational with my talking children who do engage with me. I will rejoice over how once during a very long puzzle play, my non talking angel told me “two!” as she put the number 2 in the correct slot. I’ll be happy in how she now does turn the pieces around, only giving up a few times and asking me (Pulling my hand while holding the piece and directing me to the right hole!!)

I can not thank God for our challenges as they are just too overwhelming. But I’ll thank Him for other things. I hope He sees the above paragraph because I’m too sad to talk ‘happy’ right now. Maybe later 😅

And He won’t mind waiting.

It Gets Even Better!

Man, specialists are BUSY!

The hand specialist can see me about my finger- On February 20th! Not sure what I’ll do if the pain gets worse before then. Not doing the GP thing for a third time for a fourth round of antibiotics, that’s for sure!

PS. I changed number. Those who had my old one, please mail me and I’ll send you my new one. Not all were saved as contacts.

How to Get Onto the Cancelations List-TMI warning

Speak your thoughts out loud instead of just thinking it! That’s how to get on.

I am struggling scarily now. As predicted, the stricture (narrowing) has returned to my urethra. I spend so long trying to PUSH urine out that my feet both become numb and the pain when I have to get up and use them is horrendous. I almost cried out to my family to try rub some life into my feet earlier on today. It’s so bad, the struggle, how long it takes me to get just a few drops out, that the other night I suddenly heard my husband shout, “Are you dead?”

Even as I type, I’m on the loo, having fallen asleep twice while in here with a full bladder that I cannot empty. It’s scary. And that’s why I’m blogging, to keep myself awake.

So, earlier today, I phoned the urologist’s rooms to make an appointment. I was given February 19th. I said out loud, “Well, there we go! He told me not to “wait so long next tome “but HE is so busy that there’s no choice!” She then quickly asked if she should make a note to call me if anyone cancels. Yes please! And I hope it won’t be on the day I and Mr son go to the pulmonologist. In the same way I suspect he has AS, I am not very sure if his lungs. If mine are partially collapsed and get sick the most when we catch a virus, what if that’s why he is always the worst of the children? Why does his chest take the longest to heal? And what about his allergies? It’s time to find out exactly what he’s allergic to and get the perfect prescription for him. Currently he’s using Allergex tablets.., I was on them till the pulmonologist moved me to mometasone nasal spray. So who knows..?

In the meantime, I think back to the first time I got this stupid urethral stricture. To when my legs became so numb that I couldn’t feel my feet at all why I stood up and feared I’d fall. I truly couldn’t feel the floor. Stupid me thought my bladder prolapse had gotten worse. Haha. Wrong!

I feel like my body is conspiring against me. And my questions about the urethra is- WHY? What’s causing this? And what will the long term plan be? I can’t keep having procedures under anesthesia every two months. I had the surgery on November 15. Symptoms began in December.

And here I sit, scared. This will set my kidneys backwards. What if I end up totally unable to urinate before Feb 19’s appointment that will only set up a date for the actual procedure to help me? I’m terrified of self catheterisation.

All this, the pain, the struggles, the fatigue..to think (More disease, different disease..)it can get worse is horrifying.

Why? Why is my urethra being strangled? Tingling has begun in my feet and is traveling up to my ankle even though I stood up for a while. Undignified, this blog post. But so is disease-undignified.

And scary.

And each time I stand up, I get upset ‘cos that means the urine isn’t being forced down. I feel like when you’re giving birth and the baby’s head slips back upwards again. But more helpless. At least in labour there’s an eventually going to be a forceps or an emergency c- section. Here it’s me alone in the toilet at 23:24. No catheter in site.

I hope tomorrow will be better.

And no, no change in my finger. Tomorrow is the last day of the third antibiotic for it.

Fun times!

I’m giving up. I’m going to try sleep knowing I have urine in my bladder that I couldn’t get out. I have four more tablets given by the urologist post surgery to help flow of urine. Time to use them. Then what?

Sorry for the TMI. But I will not gloss over my suffering. And I can’t be the only one in the whole world going through this right now. Maybe they’ll find this piece and know they aren’t exaggerating.🤷🏽‍♀️

I’ll Thank Him ANYWAY

Wow, wow, wow. After a terrible night where my elbow (the one that was operated on ) was keeping me up, today took me back to 2011. The pain is low, where my coccyx is. And it has not reduced in intensity no matter which tablets I’ve taken. I just want to CRY. Or kick. Or scream!

This is nonsense! Deep ache going down my leg. It’s like someone is drilling into my back, and I don’t know why it’s so bad! I didn’t overdo anything yesterday. I didn’t sweep anywhere today. I didn’t bend into a trolley like I do sometimes when Mr doesn’t do the grocery shopping with me. I didn’t do much of a workout, only 15 minutes…I didn’t even wash dishes- I stacked the dishwasher. Ok, I guess THAT bending might not have helped. But it shouldn’t be like that! It shouldn’t be like this!!!! Life is not meant to be about levels of pain. It should be pain free completely.

I read something shared by one of the Associations. I can’t recall if it was the British AS one or the other one called something like ‘Autoimmune inflammatory Arthritis society,” that covers all the autoimmune inflammatory arthritis types out there, but anyway, the article said that scientists had found that unlike rheumatoid arthritis where it’s the joint that’s inflamed, for AS, it’s the bone, not the joint. No duh!! We feel it throughout, it’s not only in the joint! I could have told them that for free. But I felt validated too. Because every time I tried to seek help and they’d try tell me it’s muscle not bone, I’d tell them that to ME it feels like my bone. They would try poke my JOINTS in my between my spinal vertebrae even up to my middle back area (as opposed to down in my my SI joints where I said the pain was!) and of course I didn’t feel much there back in 2011-2015!

What do I with all this? The excruciating pain? The fatigue that was so evident that Mr felt sorry for me, telling me at midday that I look “so tired, shame!” What do I do when I feel extremely alone, nauseated from the pain tablets and helpless?

I thank God anyway. He must be doing SOMETHING with all this suffering. It can’t be for nothing. It’s been decades and it’s relentless. He MUST be preparing something stupendous and amazing for me. I know He will wipe the tears away, I know He will be excited to give me a new body. I know He sees my pain and hates that I’m going through it. And I know He loves that I lean on Him anyway. Even though He isn’t healing me.

Even though He isn’t healing me.

God isn’t a fairy godmother like I thought when I was a child and expected Him to work miracles for me. He isn’t magical. He doesn’t just do things for the sake of just doing them. He doesn’t NEED to perform a miracle in order for me to believe in Him, trust Him and love Him like He has to for some doubters. So..Why SHOULD He heal me when I don’t need to be well in order to glorify Him?

I can ‘live’ for God even when I feel like death would be preferable. I can show His character to every radiographer. To every doctor…The GP just had this look of awe on Friday as he heard about my life- he’d wanted to write me a sick note to be off work for the finger, not my bones. Like he was seeing what the friend of an acquaintance saw in me, like I’m an angel. (Not that I FEEL like one.)

God made me to glorify Him in the pain. And I can do THAT perfectly. I can smile at my children, sympathize when they spin and smash into the TV stand, getting a bloody lip. I can praise my teen daughter for giving away a whole box of expensive, fancy biscuits (she’d bought for herself) to a beggar on the street whose board claimed he had no food at home. I can be a present mom precisely because I know God is present for me too.

I’ve been studying the book of Job. I always study the Bible from the start to the end. I don’t do thematic study except for when it comes to Daniel and Revelation where I compare similar themes. This month more than ever, I felt Job. When his friends hurl accusation after accusation, he can confidently tell them he KNOWS God is not punishing Him for something because he has done nothing wrong, and done everything right.

And so do I.

I got sick from infancy. I did nothing wrong. And I aim to do everything right. Unlike some accusations hurled at me over the years, I DO have faith. Faith that God knows best. Unlike some accusations, I know I will not be miraculously healed by seeing some weird guy who claims to fly to Russia in his head! I know my healing will be when God comes. After all, I’ve heard of some AS patients going into remission. But not healed. Why should I think I deserve what they don’t have? I know of too many AS patients who have died due to it. Why should I live? I’m not any better or more worthy than they were.

And that’s ok. I’ll thank Him anyway. I’ll praise Him for the good and the bad. I’ll thank Him for the little milestones. Like how my non-talking twin was terribly afraid of dolls for AGES! And now suddenly has been taking her big sister’s baby girl from her room. I will tell you that I left the shops extremely sore but happy that I found two brown babies for the twins so the one stop stealing her big sister’s baby, and so the other stops crying that she too doesn’t have one in HER hand.

My baby girl isn’t scared of dolls anymore!! I’ll thank Him. Now and forever more.

Toxic Parents?

I have seen this topic on YT where people or psychologists etc speak about toxic parents, narc parents…I came across a concept I shared with someone who because they’d never lived it, it didn’t even merit a comment. Yet is something extremely sad.

Losing a mother who didn’t love you.

I am grieving not the loss of someone who supported me, encouraged me, cared about me, called me to ask how I am, I grieve the fact that I will never, ever, experience that. Ever.

I come across memes (always did) about being grateful for mothers because they are our biggest cheerleaders, will fight for us… I stop reading. I stop reading because it is so untrue that it hurts. What 42 year old woman with a living mother drives home from a medical appointment crying wishing she had a mom? One whose mother doesn’t know how to be one.

Some people grieve their deceased moms terribly because they’ve left a huge hole in their lives. I have an acquaintance whose mom died over a decade ago I think, yet the pain is so fresh and awful even today. When she first told me how much it hurts to not have a mother, I naively told myself that the positive in not having a loving mother is that I wouldn’t feel such pain at her death.

It’s not actually true.

It’s still horrible.

Listening to the lies at the funeral was one of the worst things. I knew I hadn’t wanted to be there! Standing there next to my lying sister was HORRIBLE. During the week, she had sent through what she had wanted to read out as a “children’s tribute.” I told her point blank that it’s a lie. I told her should say “me, I” instead of using “we/our.”

She didn’t listen to me.

“Our mother loved us very much. We are what we are today because of her. She supported us…”Me are what we are because of her…” VOMIT! LIES! I had wept when her coffin arrived at home. My dear sister-who stole from her till her dying day- was busy primping and preening while the body arrived. Some friend of hers was putting make up on her much as a bride gets made up (Well, the bride who wears make up. I don’t.) She was naked under a towel- I assume so that her evening gown type dress didn’t get make up on it. The very picture of deep grief.🙄

She came up with some tears after lying about my mother’s final evening. I can bet anyone a million Rand that my mother was NOT dancing and singing to music by my sister’s singing group. I don’t even know that she was even home that evening. (She seldom is. Ask social workers currently involved. Yes, this year I’m telling all the truth.)

I was so angry at her lies about mom supporting us. Supporting where when she called me “a waste?” When she told me I was “lazy” for being my children’s teacher and my home’s domestic worker and children’s nurse? When she was ungrateful for food bought with our own money, busy telling her niece that we didn’t buy her meat when she had enough money to buy her own meat? Support my foot! Our singing friend had said that if we broke down, she too would break down and then she wouldn’t be able to sing. Well, the lies made sure I felt no grief. I definitely didn’t break down into tears. And I stupidly hadn’t fully realised how bad my sister was. When she broke down as we sang, I kissed her. I thought she had a heart.

Weeks later while she was out having fun, paramedics arrived at my dad’s house- where she lives. She had made a false call, stating that he was frothing and foaming at the mouth and was unconscious. She wasn’t even home. The neighbours had seen the ambulance arriving and had rushed over in a panic. My VERY WELL father was nicely seated in the house. He told the paramedics, “She took my bank card and was meant to buy grocery. She stole R5000. She hasn’t been back, she probably called you so you would take me to hospital so she can be free and not care for me.”

I kissed someone who could do THAT to their recently widowed father. Someone who helped get rid of three workers we hired to do her job as a young, able-bodied adult child living in her parents’ house, eating her sister’s food and using her electricity.

This post is going to be the start of my dealing with my life as the child and sibling of narcissistic people. I hope that in the same way I felt “seen” when I read others’ posts, my post will validate someone else suffering in silence and hurt . Only last week did I state to a friend, and then my cousin also state to ME , that I was not only abused, but am being abused today- by the very same father who we tried to get help for and were still feeding and giving electricity to despite him being able to afford it. This wasn’t only Black Tax, this was narc abuse. And I am trying to now come to terms with that. With what it did to me. What it has allowed others to do to me. And the fact that I was loved as long as I lived by their rules. But now that I’m an adult, that love was found to be conditional.

I didn’t ever have a loving mother. But my father is not loving either. Ask me how many times he has phoned in the last five years to purely ask how I am. Ask how many times he has called me asking me to phone my sister to ask where she is so she can go back home and care for the parents she tells everybody she is caring for. Ask me how many times he phoned me telling me I must buy more than what I had already bought him. Ask me if he at least tried to remember any of my chidlren’s birthdays, and I’ll tell you how he often tells us to remember my narc sister’s child’s birthday.

It all hurt. I have a relative who hated my mother so much that they said I had to now work on the trauma of her hating me. While I was still in touch with my father whose final phone call on Dec 31,2023 to me was to tell me my children had stolen his cellphone.

As my daughter said, “Grandpa knows how many thousands we spend on him every month. Over ten years of those thousands. If we wanted a phone, you’d have bought one for us yourself. We have money.”

I’ll elaborate on this later when I explain why I’ve gone no contact with him and my sister. A sister who stole so many of my mother’s phones that my mother in law stopped sending replacements.

I can’t heal while wounds are still being created.

And neither can you if you came here as the adult child of a toxic parent. You can merely survive. And survive I did. Able to love others. Never emotionally stunted. Able to be empathetic. Able to give my heart DESPITE, not because of her…I am who I am because that is my nature. (When I was a teen, my GP became exasperated with me for caring about a family at church so much that I got tension headaches and a huge IBS flare up.)

I am what I am, because God is my Father.

I know our experiences will be different, but the pain caused is the same. And may we who are believers find healing in Him Whose name we bear. Who is proud of us for following Him. Who loves us for obeying Him. (My mother criticized my decision to be modest over and over and even mocked friends who visited them in my absence when they heard my father was sick, telling they were dressed like me.)

I grieve what a mother should have been to me, and I rejoice in what my children think of me. I pray they always view me the way they do today- fair, not harsh, caring, gentle, very patient…I’ve certainly never whipped them with a cane as my father did, nor threw anything at them that took the breath out their lungs and caused them to wheeze for air. I will never have a mother who is proud of me for living right. But I will be a mother proud of every good thing my children do.

Let’s CELEBRATE!

Man, I was nervous for my children!

Many parents in the Cambridge group had complained that there is a huge leap from IGCSE to AS levels. They spoke of children being traumatized after exams, of terrible marks, of needing to start studying as if from the beginning with tutors and taking a further 12 months to truly be ready…

So while my children were excited to be receiving their results this week, I was secretly nervous. I didn’t want their confidence to have been misplaced.

My daughter’s wasn’t! She got a high B and an A! My son..I don’t know if anyone recalls my saying one of his signs of his ASD was how he answered English essay and composition questions… He was so sure he’d gotten an A after the exam but nope, he got a C. And a B. His poor sister was so devastated on his behalf that she wept in my arms for him. I’d secretly shown her his results so that she wouldn’t make too much of a fuss over her better marks, not knowing how he’d done…He wanted A and B only.

You win some, you lose some! Later on, she was able to have a big ole “Yay!!” moment 😊

For me, it’s a relief. They PASSED!!!!!!!!!!!!

I was able to delete my Geography and English folders tonight!! We have a lot to work on. Their remaining subjects are very hard for them and I already see the struggle. But hey for more, most of their high school battle is OVER!!

They passed!!!

Where is He?

Hmm, our girl’s birth father always communicates. He asks how we all are, I ask him where he is and then check if he’s found any work or if he’s still living with his aged mother.

I’m worried. I don’t know why I’m so worried given it’s not been even six months’ silence, but when he has initiated contact, he ALWAYS replies to my reply. But his last message in October elicited a response from me, and he didn’t even read it.

Birth mom said she hasn’t heard about him in over a year when I mentioned the uncharacteristic silence

Yes, he’s not someone I’d want to meet physically. I would never want him to know where we live. But I do want to know if he’s dead. She doesn’t have contact details of his family, and given some allegations and rumours that have been made, and the knowledge I myself have of him being a repeat visitor as an inmate ‘somewhere’… I wouldn’t even dare ask her to find out from family. They broke up and it wasn’t just because they realised they didn’t love each other.

Life won’t give him any chances. Unemployment is high even for educated people with no record. For him…The life he lives, a life that is scary to me, is one that has high risk for him not being alive.

But it is sad. Life handed him a very bad script. He COULD only play the part he has played unless a miracle happened. What else can you do as a male in South Africa with no education, a very poor mother, and close family members who don’t keep the law? And a very poor social benefit system that definitely doesn’t give you money to live on?

I hope he’s ok. Or, I hope he’s at peace. And I hope he has no more victims.

What a complicated world I live in.

NOW He Gets It

ALL the supplements my four younger children are on. One is SleepVance to help my one four year old sleep. She will stay up till 1am, or wake up at 3am. So I have been buying that for her, and what I didn’t add in the picture was my nine year old’s melatonin. She is on 5mg after the paed suggested the original dose was too low for her and she perhaps needed 4mg. I can only find 5mg. Works ok!

One was chewable zinc, but my non- talking twin hates that specific gummy so I bought the syrup for her. Right NOW (the picture was taken two months ago.) they are all on the liquid one anyway, as it contains more zinc per teaspoon at a lower price, than the chewable gummies. It’s less pain on my back to dispense tablets than it is to bend down to each child and feed them a spoon of syrup. But yeah, the magnesium and zinc are cheaper in syrup form.

So, these are all supplements that research claims help with certain aspects of ADHD and autism. There are also essential oils but it…I don’t even know if THESE are helping, to add extra is just pointless. Mood, ability to think, reasoning, calming…You’re meant to ‘overdose’ them as it has been seen that most of these children lack these nutrients in the amounts non neurodivergent people have, but that would be even MORE expensive. And three are on prescription meds too. And even with these supplements, I don’t give every single one every day, to try slow down the usage. I DO give Omega 3 every day. But again, not in the huge amounts they state.

Why buy them?

Desperation. I struggle with the symptoms more than the children do. It’s emotionally taxing, and now that my husband has been on leave, he FINALLY gets it. He finally sees the pain of raising our non- speaking four year old who can’t communicate in a way we understand and wants/takes things that she shouldn’t have, and wants things done that are impossible to do, leading to mega tantrums. (Like wanting to balance an orange on top of a pen and acting as if WE are refusing to even when we show her the things she wants are physically impossible.)

He finally understands the non-stop heartbreak of watching your precious child not able to put you in her world. And it is breaking his heart. I downloaded a playlist of specific classical songs that research has shown helps with brain development. I call it “Brain music.” I play it when the children are eating. Research claims 20 minutes a day would be perfect. I don’t always get that because the very angel worrying us the most is extremely mobile, getting up during meal times and going all over the place.

But I AM thankful that both twins love it! Classical music isn’t always lovely sounding! But my talking twin (A) will start making her constantly present bunny dance, and shouts, “ It’s brain music!” And my non- talking twin stops chewing, and gets this look on her face as if she’s digesting the tunes. With an enigmatic smile on her face. It’s too sweet! It’s like I’ve given them a huge treat.

Yesterday, my husband wondered how much an e-speaker would cost, so when the twins have quiet time in their rooms, we quietly pipe brain music into our non- speaking twin’s room, “for my poor girl especially.” Now he gets it. Now he gets it.

I can never explain to those who don’t live it, the constant strain of having all these children with significant challenges, but especially having HER- a child we so desperately want to reach but can’t.

I tried to join them for family worship two evenings ago. I stopped because both twins see me as the FoodMaster, constantly asking me for stuff to eat and drink when I pray with them and when I put my talking twin to bed. They never do that with the others. My non-talking twin grabbed my hand, pulled me and struggled to finally bring out “p-p-peanuts and raisins.” I congratulated her for asking for them! Then she took me to the FREEZER and gestured for me to get her an ice lolly. She has asked for them by name at least three times in her life. But that’s the nature of the game. Abilities she had just disappear. She no longer calls her daddy, “Dinosaur.” But she doesn’t call him Daddy either. I preferred dinosaur to nothing.

But yes, the word meaning issue is a struggle I’ve noticed for a while now. She will say a word. Blurt it out after great difficulty. But what she says isn’t what she MEANS. Like meaningfully looking me in the eye and randomly shouting out, “Dolphin.” I can tell that’s not what she wants to say. And it’s a struggle in my eight year old son too. He will string together sentences that are grammatically correct most of the time, but he has no clue what the words actually mean. And he will throw tantrums thinking what was said meant something else. I ask him when I can tell that what he’s saying is ‘wrong,’ what he means. But he can’t re-phrase. Like when he has just returned from a drive with my husband asks me, “Does dad have driving skills?” What does that mean to him? And of course he does, given he has just driven him. So what does he mean? It’s scary and draining. How do you change it? How do you fix the brain so that you all understand each other?

I don’t know.💔

I Wish I Had Lip

I wish I was able to reply to people. I was brainwashed into being a people pleaser. To be quiet. To not even explain myself in case that got me a beating. And sadly, that lesson has remained ingrained in me even today.

The woman who thought I was a domestic worker..then upon hearing I lived in the complex she asked if we had bought the home or were renting it, I should have asked her what it had to do with her.

I didn’t.

The relatives who send me stupid messages about the Bible being fake, about how I should change my values as I’m sick because I don’t believe as they do (my values which are not harming them and which I don’t even share with them ie. Speak about with them), I should be able to tell them they are wasting their time.

When someone tells me how wicked my mother was while ignoring their father’s guilt..I should be able to tell them they are talking nonsense. Like Job, I should be able to say as he said to his useless ‘friends’ in chapter 13, “You think you’re the only ones who have knowledge. I’m not inferior to you. I know as much as you do, and I know that what you are saying is a lie.”

But I don’t. I dislike conflict. I just keep quiet. I’ve only done it with one friend, and even then, she’s not being stupid or mean or unlike like Jon’s friends or these relatives mentioned above.

2024 is seeing me focusing on what I can control, on my health, on those who suffer through no fault of their own, and on being a good friend to good people.

But yes, I wish I had lip. I wish I could retort back, I wish I could call out racism when it happens. Not swear, not curse, but show that I’m not inferior, and I have as much wisdom as they do. Maybe one day I’ll grow up!