Between a Rock and a Hard Place

I think I’d have made a terrible ‘normal’ mom! I just can’t do it. It’s not in me. Those mums who in their presence of their tweens and teens would tell me they couldn’t homeschool as they can’t stand being with their children? I don’t get it. Those children are old enough to turn on their own programs, read their own books, help with chores and have conversations that have a beginning and an end and make sense to both parties.

My life isn’t like that. My girl pulls me and demands food too often. This week, I lay down on my bed with a huge sigh of relief and not a second later, she burst into the room and immediately came to my hand to pull me. I told her, “Nope. No way! I need to rest! I’m not going with you. Come sleep with Mommy.” She screamed “Shleep!” Then daw” and ran out.

Then she returned with a doll! Ran out again and fetched her teddy. And so we ALL lay down except..we didn’t. The dolls did! But she has no concept of safety so didn’t realise that she was constantly right at the edge. And wouldn’t budge when I tried to move her towards me, away from the edge. It didn’t work. Lying down wasn’t happening as I was sitting up trying to roll her over, of sliding her bum over..,Lying down was just as hard on my body as not lying down. So I got up.

Her behaviour in always wanting me to go somewhere with her is the reason we have been looking for an autism learning centre. It’s for the sake of the other children that I want to send her to a more therapeutic learning centre.

So why does it feel like I’m sentencing her to a prison term? Why am I not following up with the director who I’m meant to be seeing who runs a centre that would suit her? Why do I feel so torn? When she backs into me expecting a hug, my great melts. When she deliberately looks into my eye and smiles, i I want to hold her forever. And that’s the problem.

I enjoy her. It’s not ALL gloom and doom. And sometimes she does wonder outside with the others before coming back in to look for me. And even the food she’s always wanting? I love seeing her open the correct cupboards and drawers to get herself a spoon and bowl.

I enjoy being her mom too much. I enjoy her presence. I enjoy her. And that is why I am very relaxed. Maybe the director will e email today. And maybe I’ll make a plan for her. But I’m not sure she’d survive

Her dad feels it too. He doesn’t know whether she would even thrive without mommy there. My angel needs mommy. And mommy seems to need her angel.❤️

Please God, Give Me a Break

I can’t even celebrate good news because it’s tinged with negativity, and because something else comes up. When will I just sit in the normal turmoil and trouble I already have? You know that even an old rheumatologist heard the very abbreviated version of my life and told me You were unfair in making my life so hard. Can’t I get a break?

Words I’d say to God right now.

I’ve told people who care, that each aspect of my life on its own is enough to cause strain and continual stress. But now when it’s all combined and on my shoulders, it’s unbearable. Yet bear it I must.

We have solved the heart issue- a little bit. If you call beta blockers a solution, then yes. But if you think it’s great, they’re not. But I can’t even rejoice that at least her heart rate isn’t a problem because now we have yet another problem.

I think we have floating rib syndrome. I hope I’m wrong. I hope it’s something we can fix. I hope it’s nothing major. I hope it is not as bad as I think… My same Ammy whose knee hasn’t even closed up yet, has complained of pain, chest pain for a long time now. We all thought it was linked to her heart but given I had two heart rates on different days both under 100bpm, it had to be something else. So today I asked her to describe exactly what this pain is like.

She said that it’s like something is loose in her chest under her ribs. Like it’s flapping around. It hurts when she breathes in, when she’s jumping and when she’s running or walking fast. I tried to feel.

Her rib is loose! It’s horrible! It clicks and you can feel it grating in her sternum as it vibrates the bones when she moves it back and forth. Her other side (right side) is normal. There is no moving rub. I can only think lf floating rib syndrome. But I have never studied it. It’s just a term I came across long ago and just sounds like it.

I’ve emailed the paediatrician to ask who to see. Her knee has not even closed up yet!! Why? Why is this poor girl suffering so much this year? And when will my heart get a break from anxiety and worry??

Birth Mom?

You folk! I almost didn’t tell birth mom that our girl wasn’t great. She was trying to get a job- went for an interview the very day she was admitted. She had trial dates thereafter…

And I know how guilty she always feels when our girl has a problem. But I figured I should..just in case. So I told her.

Today, my girl asked if her birth mom knows she’s still not well. Did I feel happy to be able to say YES!? And I told her the truth, not only does she know, she was the first one to ask how we all are today, how things are going with healing and recovery.

I’m so, so happy! Happy that our girl knows she matters to her birth mom, and happy that we found each other despite the social workers lying to each of us!

God made a way. And human ingenuity and care made things happen. All to the betterment of my girl. I told her that I told birth mom that she’d asked if birth mom would have been able to afford therapy if she’d stayed with her. I told her that birth mom not only definitely wouldn’t have, but she herself told me while we were in hospital that she is so grateful for us, because she would have not afforded the medical care we could provide.

It’s sad. Very sad knowing your child would be untreated for many conditions. And subject to our not so great South African medical system. I can’t imagine being birth mom and losing a child she loves so much.

But I also know that I am keeping the promise I made years ago before we even knew who our daughter would be. When I promised I would take care of her just as I would my biological children. Nothing has changed. She’s my baby.

She’s our baby. And we love her to bits.

She even helped me do some scolding! I told my girl many times, even before we left hospital, to remain still. To stop being too boisterous. To keep her knee as immobile as possible and do other activities like watching, reading, colouring in…Anything that won’t need her knees.

Yesterday she was caught crawling around in the garage. Today I caught her kneeling. I told the surgeon that tonight in ER as she examined the still oozing wound that ‘should have’ shut by this Sunday. And she reiterated what I’d said. NO!!! She added that there isn’t much blood flow in that part of the body so things can break down if they’re stopped from healing well. And that while it stays open, other bacteria can enter and do to her what the others did that got us admitted to hospital.

I hope she listens. Even birth mom told me to tell her calm down a bit. But Ammy then sent her a video telling her that the brother “tempts” her, so she’s not sure she can comply. 🤣😫

We’ve come a long way. ❤️ Birth mom doesn’t hide when we walk about our girl. All is well. Now our girl must heal. Surgeon says the wound itself might heal and close up Saturday. Hoping we can try control her. Don’t ask me how unless I forget all other children and just sit with her all day every day.

I’m happy birth mom is sticking around. Proud of her!

Limbo

Wow. This sounds like one of my titles to my old blog posts when I didn’t know what was wrong with me, was SURE there was something up and was waiting for the test results to prove it.

How wrong I was…The tests did show it. But those who looked at them were blind.

And on a side note. Here’s another reason (as if one should have ever been needed) to not say to someone who’s found out after over a decade of searching, that they have an incurable progressive disease, “Hey, at least you know what it is now!”

Firstly, it’s not much of a silver lining finding out that all the years you sought a cure, there was none to be had at all. s I’ve said before. I wasn’t looking for a name, I was looking for a cure.

And today’s reason? Knowing doesn’t reduce the suffering that made the person seek help over and over again. Knowledge – in my case- didn’t change anything. It just gave a name to the grinding, grating hip bones that feel like they’re going to grind each other into powder when I walk.

It means I knew why I woke up with stiff fingers that Mr immediately noticed were swollen. It didn’t get rid of the pain nor the swelling and knowing doesn’t help when even the things I can try to help reduce the pain, cannot be tried.

And thus we come to “limbo.”

My girl’s knee started swelling. Not the same area that it began in last week, but Sabbath (Saturday) when I had to remove her dressing and clean her up, we both definitely noticed the raised area on the side of her knee. And even photos showed it.

Yesterday, the area was still there, and has been warm to the touch. Not good. And she tells me today that she didn’t sleep last night because of pain. Even worse.

I’ve never had a surgical wound that was left open, so I don’t know how they behave as they heal. So I sent photos to the paediatrician. They said I need to see the surgeon today.

I contacted the surgeon…She’s operating all day today.

Limbo.

In the meantime, we continue with antibiotics. And I try lie down and hope it’s something that won’t need hospitalization.

My poor angel is scared the infection will never leave and she will need an amputation. I told her we have much more we can use in our arsenal of weapons. Amputation isn’t an option in my head.

And hey, maybe it’s not even infection anyway! I don’t even know if I SHOULD worry. I just know heat and pain when there’s been infection are bad signs. Add increased swelling, and no idea what the next step will be and WHEN it will be.. and we have..

LIMBO

My Daddy

I love my dad. I loved my mom too. But I’ll quote what a dear friend wrote…A friend who had lived with both parents for over a month, heard them talk about me, and been lectured about me.

“I’m so sorry to hear that, sis. I know you loved your mother though your mother never loved you…”

That is the essence of narcissistic parenting. They love you as long as you are following their own agenda for your life. You are extension of them, you are not your own person. And so, when I became an adult and followed my own agenda, I became a pariah. And the scapegoat.

My dad was violent but also had moments of softness and tenderness that I never got from my mom. I think that’s what stopped me from objectively telling myself, “This is abuse!” as an adult. Yes, as a child I did. But when it stopped being physical violence, I didn’t realise it was still a form of violence.

To again reiterate what my friend said after having spent time with my parents, “I can see why you wanted to escape when you weee young.” So to those who like to excuse the behaviour as “old age,” and somehow diminish the responsibility my parents have..That’s hogwash! It’s always been like this. And I know many old people who are NOT like this.

Let’s start in 2013. My mother was retiring. We decided to take our bonus and pay off her debts so she’d have no debt once retired. We did for MOST but had to keep paying her Truworths and Edgars accounts with our normal salary each month as her debts were greater than the bonus. We finished off the Truworths and then my sister moved in with her husband, and told me they had the Edgars bill under control so we could stop paying it.

That’s when everything went wrong. The data we used to buy my mom to go online, finished within two days when it used to last a month. Her bank cards would suddenly go missing and she’d have less money in her bank. Her laptops started disappearing too, and her cellphones also joined in. I wonder what changed!🫣

My poor mother in law sent phones three separate times till she realised that the problem would never end while the inhabitants lived there.

With our own funds, as a gesture of goodwill and love, we had been giving my parents (and now my sister and her husband) grocery every month. In the beginning, my dad was grateful. He was the only one who said thank you.

But in the past few years, things went crazy when we decided to save my mom her money and I took signing rights over her banking. (We went to the bank together and she willingly told the banker that I should have access to her banking even online.)

We started feeding them from the money from my mother’s pension, AND continued giving from our own pockets as well. This continued till my mother died. And that’s when my dad showed exactly where he stood.

I’d noted it. But I hadn’t clicked! The friend we hired to care for them was only meant to work Monday- Friday BUT lockdown started just as she was arriving. I told my sister the rules. After all, my sister is young and able bodied. Of course she could take care of the household during the weekends!! And I stated that the helping lady should have leave as well.

After four weeks of non stop working, day AND night, their caregiver told them in advance that she was going to go collect a mask, and just visit with a friend. When she got back, my father told her not to listen to me. The ‘Me’ who was paying her measly salary!😫He said I was “poison”🥹and that I was leading her astray. He said that she had to work all the time, as my sister had her five year old to care for.

Wow, wouldn’t it be nice to only have one child to care for and forget all other responsibilities? Of course, I reiterated that her salary was low, what we could afford was little. And that she deserved a rest. My father then asked her (or the neighbour) to take a photo of a letter he was sending me. He was telling me I am a Pharisee and failing at my duty of caring by allowing the poor worker to have a break. That God is angry with me etc.

Guys, this is not old age. My dad has always been like this, ask church members. Always publicly loudly correcting them, telling them they don’t study the Word…It was hurtful to know he could turn his venom on me. It was the first time that I could read for myself what my friend had told me- though I had believed her anyway!

One time, we brought grocery. My husband was putting the sugar my dad had demanded, into a cupboard. My dad yelled at him to open the packet and pour it into a container. Never has anyone thought of how long it takes us to shop for them. How it kills my body. How long it takes to drive to their township. The fuel spent. And how we’d left our children to their devices in all that time. Never! Instead, they’d complain about what we brought. It was hurtful, very hurtful. we didn’t do it for acknowledgment, but don’t bite the hand that feeds you!

But worse was to come. As my husband told my father that he would leave the sugar in the cupboard and my sister could open it, my dad went ballistic, yelling at him, telling him to leave my sister out of it! Huh!? She lived there!! She was eating the sugar too! We had to get home to our children! Then my father asked my husband to phone my sister and tell her to come back home as she’d been gone for too many days.

We’ve played that game before. My dad’s phone calls in the last five years consisted purely of him telling me the extra things I should buy for them, telling me to go look at some mess my mother had made, telling me on weekends to phone my sister and tell her to get back home. Note what was missing when he phoned? Asking how we are. Asking after the children. Phoning just to show he loved me. When my husband told him that every time we phone, my sister never answers so he doesn’t want to phone, my dad said, “Fine. I’ll tell the church people that my son doesn’t help me.”

🥹💔He would sully the name of the only one who was consistently feeding him? Just because he left to the resident, a duty that was hers? And it’s true, my father did indeed sully our reputations to church members and to relatives. It was the worst few years of my life. It was bad enough knowing my parents didn’t love me. But when relatives in other provinces started phoning me when I’d never given them my number, ordering me to sort things out in the home while I had Covid… It was hard. Very hard. My parents were telling people that we weren’t feeding them.

The betrayal hurt. Seriously!? I used to wish the people who were being lied to would go ask the neighbours. The neighbours saw how often we brought food, even commenting that it was a lot of stuff.

Fast forward after my mother’s death. We tried to save HIS money from being misused as it was the only income he’d now have. He then said that he’d heard from the news that workers like my mom had big pensions, so it was clear that I had been stealing my mother’s pension payments and only using a little for the home.😭

Me. ‘Me’ who’d even given our bonus for her. Who took our fuel to give them food. Who used our own money to buy electricity and food and personal care items. Who broke my back shooing for them. I was the thief. Not the one living right there causing cellphones to disappear.

So let’s recap. I’m a hypocrite Pharisee for letting a worker have one morning off after four straight weeks of working day and night. I’m terrible for not phoning my sister to return though I’d phoned multiple times before and been ignored. And I was being lied about to people when I was the only one consistently HELPING.

💔

And the family believed it. I didn’t even want to attend my mom’s funeral even though I’d paid for it. She can’t see me. And I can grieve at home just as much as in a service. Why sit with people who without ever asking neighbours etc, would believe that I was the neglectful daughter? (Though again, the income was enough even without our help, had my parents been living alone or with a caregiver.)

Then, a cellphone went missing again. And my dad blamed my children. Even telling social workers a relative had tried to involve given the poor care and disappearing monies. My eldest is over 18. Start accusing them of crime and things become VERY dangerous.

So I’m done. It’s one thing to constantly be phoned just to be used. It’s a whole other ballgame to accuse my children of theft. Next time, the accusation will be against ME! After all, I was accused of stealing a pension already.

Knowing that your parents are destroying your reputation when you’re sacrificing for them, is painful. Knowing they are defending the real thief is horrendous. That’s not a father. Well, not a father to ME. Only to the one being defended.

And so there it is. I don’t have parents in the sense I think of when others miss their deceased dad or mother. I have people who have used me, not cared at all about my declining health, abused the workers I hired and who now accuse my children – to a social worker!!- of stealing.

As my daughter said, “But grandpa knows the thousands of rands we spend every single month helping him and have spent for YEARS. If we wanted a cellphone, surely we’d have bought one? It’s obvious we could afford it!”

The final call I received from my father was December 31, 2023. He told me he was disappointed that my children (who were constantly in each others’ presence and that of their father who had driven him there!!!!) had stolen his phone.

I asked him if he saw them touching it.

He said no, but it went missing.

Before I could remind him that he lives with someone who makes phones disappear, the line cut. I didn’t call back.

The next day, I got a text from an unknown number, from someone who didn’t introduce themselves by name. They said they got my number from a neighbour. (I’ve never given my number away except to the one neighbour who wasn’t the one who shared my number.) The person said, “You better come fix what’s happening in your house. Your father is being mistreated.”

I told the person that I didn’t know them. That the abuse is by choice as my father refuses any other options we’ve given – caregivers, frail care centers and handing over his card to someone who would keep it safe and go shopping with him or for him. I told her that my house is the one I live in with my husband and family. I asked her never to contact me again.

And I changed my number.

When your father shares your number while making you look neglectful, never telling the things I’ve done despite my poor health, never even acknowledging to us that we paid to bury his wife and express gratitude for that (entitlement?) and hiding the truth about the true abuser, it’s time to acknowledge that the love is one sided.

I have a Heavenly Father. And that’s OK with me.

Sabbath Request

Before we start claiming that God is hearing our prayers and answering them, let us study the entire Bible and see whose prayers God answers and whose He does not.

Before we think because God died for us while we were sinners we think it’s ok to keep sinning and rebelling, let’s not forget that He died so that we might live for him, not for ourselves and our own pleasure.

The effectual fervent prayer of a RIGHTEOUS man avail much. Find that in the Bible.

Or find the scripture that says that if you keep sin (iniquity) inside your heart, God will NOT hear you.

I’ve had two extremely openly hateful (of God’s will) people claim that the heavenly God is answering them and hears them and cares about their requests.

God hears us based on what His word says. To the true seeker, He will give knowledge. He will always hear if you are asking Him to make you holy. He will always hear if you are asking Him to take away all desire to do evil. To those with the answers right in their hands, on their phones I plead. Read. That’s where God is. In those pages. He’s not in your self-filled human version of godliness where there are no consequences to sin.

God is in the Bible asking you, demanding of you, commanding you to live a life like His. Sacrificial, humble, pure, godly, holy.

Yes…HOLY.

Be ye holy, even as your Father which is in heaven is Holy. Can you find THAT one?

There is a call God has made. To not take His name in vain by claiming Christianity without Christ living within us. Check the commandments.

Read, please…Read! If we are not fully Christ’s, we are fully Satan’s. We can’t serve two mastered. My goodness, it’s all written plainly for us in both Testaments🥹Church attendance won’t save us, clean, pure, obedience hearts will. Hearts that love God supremely.

If you love God, I plead with you to never stop. If you love reading His word and acting upon it, you are blessed and He accepts you in the Beloved.

Blessed are they who hunger and thirst after RIGHTEOUSNESS..for they SHALL be filled.

Find that one too. Cling to His promises if you think you are too impure for Him. He died exactly for you who mourn over your state. He exchanges your torn garments for His perfect robe of righteousness. He loves you. He loves you. He loves you.

He wants you to hand over the controls. Let Him lead. He is a very good Shepherd. He will not lead you where He himself has not walked. Deprivation, false allegations, accusations, unbelief, abuse, perfection, humility, self denial, lowering Himself so God may be lifted up, the road to Calvary- that’s where Christ walked. But He was leading somewhere where none of these things will ever happen again. And He leads us there too.

Read. Read. Love. Study. Pray to be every good thing He wants you to be. If you love Him, keep His commandments. Find that one too.🙏🏾

sibling love?

I have no siblings in the way my White friends do (and my one Black acquaintance who shares the parental burden equally with her brother.) When I think of family, I think of a group that helps you when you’re in trouble. Instead, I’ve been put into WhatsApp groups where I was ordered by a sibling’s wife to sort out my parents’ house and problems. Me- who didn’t live there. I should have stood up for myself and told that female to sort it out herself if she’s so troubled by it (The state of the house)

That’s not what real siblings do. Real siblings have real love. Real siblings give, they don’t take. Real siblings work together, they don’t demand one to bear everything. When my mother died, in their very first phone call after my mother’s death, same day of her death, one told me “We need the death certificate, we need the letter of whatever, we need her ID.” I stupidly thought they meant we as in me and them, to help my dad with planning the funeral!

Nope. They phoned me the day my mother died, telling me the documents THEY wanted because they had put my mother on their funeral policies and wanted to get money from her death. Yet they hadn’t ever helped me when she was alive. They’re the WhatsApp group people who demanded that I sort out the issues THEY had with a house that wasn’t mine! Guys, I’ve never seen such ‘family’ in my life. Of course I never gave them the documents, but some other relative did. That is blood money, it’s cursed. The sibling who didn’t even send a condolence message was better than that. Just pretend I don’t exist instead of profiting from the death of my mother.

Thankfully, I do have siblings from the adoption of our Father God. Siblings bonded by the blood Christ shed for us. ❤️

But..my children!! THIS is love- real sibling love!

They bought her a whole FIVE doughnuts! Children who don’t even buy themselves doughnuts! That is love! Walking in extreme heat for the sake of their sister.

They told me that the house felt horrible without her “even though there are five of us! But it was empty.” 🥹That’s love. Missing each other. My Talkalot Twin talked a lot about how her sister was absent. And my TalkNotMuch Twin…Oh man…She was on her way to her bedroom for nap time and she passed our patient’s bedroom this afternoon, saw that our patient was BACK! She ran into her room, the patient hugged her, and our twin pulled her sister after hugging her, into her own room where she pulled our patient onto her bed and lay down next to her, thumb in mouth (Her ‘I’m happy‘ sign.)🥹

That is sibling love. My poor Micaiah wanted to visit his sister but rules are strict. That’s love. Sending cards and flowers. That’s love. I may never have experienced it. I may have experienced a huge disregard and disrespect, but I’ve seen it in my family.

There are going to be many sad souls when university time and flight school time come our way. And that is GOOD! Because then reunion time will be wonderful. All because of love. ❤️

And I hope it lasts forever.”

Big Brother!

Man! My daughter found an amazing big brother in my son! I don’t have any siblings that have ever visited me in hospital or sent gifts ever! I know I once visited a half brother when he was in an accident some years ago.

But look at what my son sent through their dad for my angel!

Yes, she has a puke bowl next to her. Yes, she has puked. No, her favourite blanket didn’t survive the onslaught. It came without warning. I think part of it is because she doesn’t know how to identify nausea. She has told me tummy was SORE but I suspect she felt nausea. Who will ever know?

I now wait outside theatre after having gone in till she slept. It was weird being on the other side-watching, not the patient. I hope it was the last time though! It felt weird, watching her go off to sleep. They made me stand right next to her “so she doesn’t get scared” and hold her hand. She is SO not that kind of child! If she hadn’t already been given a sedative, she’d have rolled her eyes!

This has set my back back badly. If I have to sleep on a hard thin mattress again and spend endless hours seated ever again, I will turn into a statue of stone! Which might be preferable because stone doesn’t feel.

Well…Few hours after I started posting. We don’t know how things went. We were meant to be discharged tomorrow but treatment didn’t seem to have achieved as much as was hoped. I’m not surprised. When the surgeon and nurse wheeled her down, the surgeon asked the nurse if they HAD given her the IV antibiotics she was meant to have begun yesterday. Immediately told me that the inside of her leg was worse than what it should be. And it is. We might not leave tomorrow after all.

I’m home for one more hour and a half. In excruciating pain. I feel like I might as well be sitting at hospital because lying down has made no difference to the pain. In the evening, I go back to my hellacious thin hard chair bed. A Paed ward is its own kind of sleep hell. You know how hospitals are anyway- nurses waking you, machines beeping. But now with Paeds it’s like the time I had that weird woman singing gospel the whole night! Or the man when my husband was hospitalised who was shouting all day and night. Except in paeds it’s more than one noisy patient. It’s the toddler screaming “NO!” over and over again. It’s the baby crying. Over and over. Day and night. It’s a very uncomfortable sleeping place at night and a painful chair during the day. And it’s my own poor girl who is restless at night anyway (ADHD) so even when I did sleep, she’d wake me from angrily tossing and turning😅No wonder her teen sister wants to find her fast asleep when she goes to bed! The pediatrician has thankfully left more sleeping help for her if she struggles.

So…I don’t know if this is some new test from God to see if I will keep praising Him anyway, or if it’s a trial from the depths of hades. It’s not comfortable no matter who it’s coming from, but I know Who I aim to emulate when He was suffering.

From the highs of a thoughtful teen brother, to the lows of all day pain and no ability to reduce the pain or pressure on my body, and the low of wondering what’s wrong with my girl’s heart, and wondering if she will be discharged tomorrow or if we have to endure hospital even longer. And this is nothing compared to what some moms and children go through, I know that.

But it’s much more than many of the moms I personally know go through. So, I allow myself to mourn the washing waiting for me to fold it, the children I’m not seeing while in hospital, the hyperactive daughter stuck in a hospital pain with a very sore leg, and my very sore body. I rejoice that I was able to make dinner for my three remaining little ones before coming to hide from them. And I hope for something better.

And then God laughed..again

In no particular order. Sudden hospitalization. Unexpected. I felt she had an infection over the weekend but thought it was just her skin. She had what she said was a pimple on Friday. She didn’t like the pain WHEN SHE BUMPED it. That’s why she came complaining.

Sabbath, she said it oozed AFTER she walked into a wall by mistake.

Yesterday (Sunday) we didn’t do vision therapy exercises as her knee was sore.

Today I phoned the paediatrician’s office to ask for an urgent appointment after I saw she now had swollen up. They said they had a slot for tomorrow 9am. But the office manager was stressed by my description so told the doctor who then squeezed us in for 2pm. By this point, the swelling had now gone to the back of her leg too.

And boom, here we are. Cardiologist for heart issues, blood tests done, swab taken, chest x rays done to check heart size. ECG done. IV antibiotics have begun, ending on Wednesday. Surgery tomorrow.

Every time I try thank God despite my trials, every time I make it my goal to not complain, something else gets thrown at me as if to say, “Now REALLY prove you meant it!”

Lying in hospital in pain-I was meant to do my injection today but got scared I’d pick up an infection from hospital-was not part of my plan for the week. Having surgery was definitely not my daughter’s plan, but here we are anyway! If this is a test, surely I deserve some credits from other trials? Can’t one year be hospital free for ALL of us?