Seriously?? April, in April we applied for a change in medication. It’s now June. Last week I got a reply from Diacovery saying they’d partially pay till October. And I wrote to the rheumy’s office and also asked a question. I asked if we shouldn’t move my appointment further out given we won’t have had four months on the new med by the time I see the rheumy. Said appointment being to see how or IF it’s working.
There’s been dead silence. Every hour of silence feels like a day. And I don’t want to ask again because you know how that goes- you get rapped on the knuckles for having the audacity to ask what the next step is regarding your declining health.
This is apparently a common problem. I’ve seen folk in the States talking about how when they email about a flare, they get seen -regarding the flare-SIX MONTHS after the flare began. Or they just don’t get the level of communication they deserve. It’s not like I’m not willing to pay for an email response. But there’s nothing…Just silence. But hey, I’ll have to pay immediately for my consultation! And it’s a lot of money. A lot.
This really stinks.
So let’s end on a sweet note. My talkative four year old loves life and is very active and energetic and crazy and sweet. I was about to add something sad about an autistic trait but I won’t. Let me see… She loves wearing a pillowcase on her head and being Pharaoh.
There.
They said I should write a book 