Tag: cystoscopy

I’ve always filled in a green anesthesia form but yesterday was the first time I read it properly before signing.

Besides not drinking alcohol (I don’t anyway), operating heavy machinery, driving, making important decisions (that one I did know) and not looking after an infant for the first 24 hours post- anesthesia, I’m also not meant to use social media either!

I can’t agree to that! I’ll be texting my friends as soon as I think I’m coherent. Which I sometimes realise – after 24 hours- I wasn’t!🫣I’ll sign for not posting publicly for 24 hours.

Today’s the day. Remove the growth, check and test, enter into bladder, do some x-rays to check it, and do urethral dilation. Now, I’m not sure why this part. Won’t removing the growth already widen it back to normal? Or is he thinking there will be scar tissue in the way, or he won’t remove it entirely so he needs to widen the passage another way? I hope I remember to ask why when I get there.

Like, what are the chances? Both children?? 🤣It’s certainly motivation to keep going with vision therapy. And I can see us needing to add more sessions at the end of the scheduled ones! It was hilarious to me. I didn’t laugh out loud, I’m too kind. But it was bizarre! One turning nine years old next month, and the other is eight. Why us?😝

My other school aides are Reafing Eggs and Khan Academy and Education.com. That way, they don’t have to write. And as you can tell, I’ve not given them age-appropriate Marks work in ages. (Pun intended) Let’s try build a foundation… It’s shaky though. I definitely see dyscalculia in my girl. She can’t even do age 4 ‘Maths.’ So, we wait, watch, work slower, and figure out the way forward next year when we have a higher medical aid plan to pay the psychiatrist her Paed thinks our girl needs, and the occupational therapist all four younger children will need. I foresee my son doing lots of driving after all the assessments are done because united we’ve got my AS under control, the pain and fatigue will just be too much for me.

I’m also still working on fine motor work. I think I got this activity from The Ultimate Therapy Bundle. Making them ‘wash’ clothes and then use their fingers to grip and open and close pegs to hang the items. My tactile defensive boy was nowhere to be seen till right at the end. My mostly non-talking daughter dumped her sock into his water and wandered off looking for food. I had two out of four valiantly and happily doing the task though! So it’s a win! And I got to see my girl NOT like the grass on her bare feet. Ahh, sensory issues, we’re e familiar with those, aren’t we?

I also bought these Melissa & Doug dress up packs. I like how they catered for not just one skin tone and hair type. I think it will be too difficult for my not talking much twin, but she will enjoy collecting the small pieces-THAT’S her thing! But, she might surprise me!

And that, was part of our school morning yesterday. The day ended with my girl worrying that I “won’t survive the operation” and unable to sleep, scared of how much pain I’ll be in. All I could do was remind her that I usually get better. She allowed what time I’d be back, if she’d still be awake. I think I will be home before her bedtime… Needless to say, only the teens know that the urologist will be checking for signs of cancer. She already was sad that they need to cut the growth out. And that knowledge and worry are enough for her.