I’m Stopping

I’m dropping the Enbrel. It really IS too much of an immunosuppressant for me. I’ve been very careful about catching viruses. Been resting my mask and going to shops when it’s not full. But what about bacteria?

It seems the paronychia is back.

I’d never been convinced it was fully healed anyway. My rheumy had seen fluid still inside my finger -even though I felt no pain-when she performed an ultrasound on it when I showed her it was still puffy.

The GP agreed it looked infected but the hand surgeon told me it was ok. It was just going to remain like that but was ok.

Well, the same finger is painful, had the small peeled off area and is more swollen than before. I’ll treat it conservatively today-hand elevated, salt soaks, topical antibiotic cream, and hope for the best. Last time it took three round of antibiotics to look kinda ok (though still worrying to me and the GP!)

This photo is today. Not too bad yet. The pain level is at the level at which I ignored it last time then couldn’t sleep that night and it had become awful by the next day. I hope it goes down instead of ‘up.’ My husband saw the picture and texted, “No more Enbrel.”

I’ll also contact the rheumy and ask what the plan is regarding treatment and tell them I’m officially quitting my Enbrel despite the three syringes left in my fridge. Or ask for recommendations for people who treat paronychias. But I’ll do that IF this doesn’t get sorted or if one round of antibiotics doesn’t get sorted. I’m holding out for Monday morning when I can see the GP who treated the first attack that wouldn’t disappear.

Sigh!

Yikes

Injection number 2 was not as great as number 1. The meds stung going in, whereas the first time I didn’t feel the liquid at all. The welt was not as bad and the following day I didn’t swell there unlike last week.

But an hour later, I felt like a volcano. Sorry for the TMI but this just might help someone else who gets this reaction. They’ll know it’s not only them. Just under an hour after I injected myself, I needed the loo for a number two if you get my drift. But before I could get up from the loo, I felt this awful burning fire going up from my groin and making my belly feel like it will explode.

Fire spread up to my navel, then up to my sternum. I was in excruciating pain, I almost hobbled out to my son to ask him to take me to hospital. I’ve never felt that before. I was on fire inside. And the movement I had had was very loose. Sorry again…

I couldn’t bear the pain yet didn’t feel I should go to the hospital. I googled kf Enbrel can cause stomach problems and found this.

What would they do at hospital seeing as this was normal anyway? So I sent voice notes to maybe five people, and begged them to pray for me.

One told me my voice frightened them. A male. Another asked if I wasn’t sure I shouldn’t go to hospital. My mom in Zimbabwe-she felt utterly helpless and asked where my husband was.

Speaking of husband…He’d commented that it was my day to do my injection and asked if I was ready. I told him, “You know, I don’t know. I don’t know anymore. I need to try. But some with reactions get worse with each injection. What if it becomes worse than just the thigh issue and mild headache?”

Boy was I right! But I didn’t expect it at all! Not this! And here I am blogging two days later and my stomach isn’t doing great.

Time will tell…