“I can’t even celebrate good news because it’s tinged with negativity, and because something else comes up. When will I just sit in the normal turmoil and trouble I already have? You know that even an old rheumatologist heard the very abbreviated version of my life and told me You were unfair in making my life so hard. Can’t I get a break?”
Words I’d say to God right now.
I’ve told people who care, that each aspect of my life on its own is enough to cause strain and continual stress. But now when it’s all combined and on my shoulders, it’s unbearable. Yet bear it I must.
We have solved the heart issue- a little bit. If you call beta blockers a solution, then yes. But if you think it’s great, they’re not. But I can’t even rejoice that at least her heart rate isn’t a problem because now we have yet another problem.
I think we have floating rib syndrome. I hope I’m wrong. I hope it’s something we can fix. I hope it’s nothing major. I hope it is not as bad as I think… My same Ammy whose knee hasn’t even closed up yet, has complained of pain, chest pain for a long time now. We all thought it was linked to her heart but given I had two heart rates on different days both under 100bpm, it had to be something else. So today I asked her to describe exactly what this pain is like.
She said that it’s like something is loose in her chest under her ribs. Like it’s flapping around. It hurts when she breathes in, when she’s jumping and when she’s running or walking fast. I tried to feel.
Her rib is loose! It’s horrible! It clicks and you can feel it grating in her sternum as it vibrates the bones when she moves it back and forth. Her other side (right side) is normal. There is no moving rub. I can only think lf floating rib syndrome. But I have never studied it. It’s just a term I came across long ago and just sounds like it.
I’ve emailed the paediatrician to ask who to see. Her knee has not even closed up yet!! Why? Why is this poor girl suffering so much this year? And when will my heart get a break from anxiety and worry??

