Americans

I genuinely felt sorry for the Americans in my groups. The ones whose health insurance tells them, “This year, we’re not paying even though you’ve done ok for 14 years on this biologic.”

I have no clue what has gone wrong. I d didn’t expect this. After all, I’d seen this.

Then yesterday, I got THIS

I have no idea what to do. I wasn’t going to rejoice, but for me, it was a given that they’d agree to partially fund the biologic. I just knew the approval was going to be the first step on a very long road. That’s the thing. But it was an obvious step. I’d even asked the nurse what the chances were of my getting declined and she said it basically never happens, we just have to follow the process.

Well, here we are. I’m stuck with a R7400 biologic and no way of accessing school fees for any of the children. And that’s the problem. I could handle being sick better if I wasn’t also homeschooling. It’s not like the Cosentyx would have helped me immediately. It’s not immediate- if at all! And it still does suppress your stupid immune system that’s on overdrive so maybe I’d have still gotten sick and needed a break. I needed four months. Four months of suffering before knowing if Cosentyx is the right med. Instead, I have THIS. No Cosentyx. No journey to trying to slow this down.

They said I don’t meet the requirements. Of course they don’t give you the contact details of the decision maker so you can ask what requirements those are! And honestly, there’s nothing extra we could say. We gave them everything the first time. And still they said no. That’s what’s hard when people I tell ask about lodging an appeal. I have no new information. It’s still the information they said “So what?” to. How would an appeal help?

I feel like I’m one step from losing it. I can’t homeschool four small and out of control special needs children. I need school. I will never be able to afford special school.

What a mess. I feel hopeless and sad. Today is a bed day but instead I’m off to meet a cardiothoracic surgeon and HOPE he has something better to say about my daughter’s rib than “Wait till you’re older then the pain will hopefully reduce in intensity.”

Things are bad.