The Nurse and the Bath

The Cosentyx nurse and general admin around Cosentyx is very different to Enbrel! I did speak to the Enbrel nurse, and I did hear from the Cosentyx nurse today, but that’s where the similarity ends apart from how they both sound kind.

The Cosentyx nurse sent an official video on how to use the auto injector. She also sent a pamphlet about what side effects to look for and when to go to hospital, with the obligatory, “some patients have died from taking this medicine” warning.

She wants me to take photos of the injector after use, and also a photo of the batch number. She will phone to find out how I feel, and then every month she will check on me.

Very different to the Enbrel experience. I just got on with it. Then again, it was less admin- no batch numbers needed. But, I don’t mind!

……….

Oh my word! Today was killer! My eldest wasn’t well so it was mom on duty for more children than normal. Like Sunday, if you read yesterday’s post! We already had our minimally speaking angel up from 2am. And then dressing and all that took a lot out of me as expected.

But the afternoon was the craziest! The bath and kitchen had no hot water. No, I didn’t think to check the DV board- the geyser switch had tripped but I didn’t know.🤦🏾‍♀️So, the bath the twins usually use didn’t have hot water. I ran their water in my bath, took their bubble bath and face cloths to my bedroom and then …It came to a screeching halt. Well, not for my talkative twin who enjoyed the novelty. But for my non talkative twin. She refused! She cried, screamed, threatened to hurt herself. And she was already undressed! She’s bathed in our bath before (Ok, it WAS years ago, but still!) but nope, not today. So I walked up and down from our bathroom to the normal bath with dishes of hot water. I wanted to cry! My back was not happy with me at all!

And then..she refused to come out the bath. She only wanted her brother to get her out. Can you see how troublesome next year is going to be?? What are we going to do? I guess she will have to adjust. For now, I called her brother out of his bedroom to lift her out and get her into the room.

All’s well that ends well…

Let’s hope that unlike the windy and lashing rain nights, mingled with crazy thunder boom since Saturday, we get less noise from the elements, and more sleep. Less wakefulness from the twins, more rest. Less wakeful pain, more peace.