Why Are You Subscribing??

Don’t even ask!

I suddenly have new subscribers here and there even though I haven’t blogged in ages and the notifications are making me feel guilty about disappearing!😅

So…Update… NOTHING HAS CHANGED!🤦🏾‍♀️

I’ve failed Cosentyx. My inflammatory markers are still too high, my rheumy still feels swollen joints, fingers etc. I’m still stiff when she asks me to move my neck. So now after giving the Cosnetix nine months, she’s given up. I was so scared that maybe I shouldn’t be grateful that I wasn’t in “I want to be dead” pain, that maybe my hopes for what treatment can do were too high and I should just be glad I don’t wish to be gone. But she assured me that her own clinical examination told her I wasn’t really undergoing ‘treatment‘ with Cosentyx.

I saw her March 3. It’s now April 5. And again, time has gone with no medication in sight. I will have a R1700 or so co-payment to make for the portion medical aid isn’t covering, but despite their approving ONLY FOUR MONTHS FOR NOW treatment with Rinvoq (daily tablets), nothing has happened. In desperation I texted the zrinvoq nurse on Thursday night when I couldn’t sleep, asking her to just get me the medication even though we don’t know if I’ll get funding for the copayment. She said she had sent the prescription to the pharmacy and they’d send me an invoice. It hasn’t come!!

Needless to say, I’m not happy.

And I’m back on an inhaler. I told you, NOTHING has changed!

The children too have not changed. Which means I am always anxious about what will go wrong each morning. What will make which child throw a huge tantrum. What will suddenly set our talking twin off and make her violent… Like punching her big sister in the eye because her big sister dared to hug her twin. 😔 Or I wonder when her larger twin will start attacking us… Or when she will walk into my room and start wanting impossible things. (Like removing the camera part of a Tablet.)

It’s such a crazy life we live. They can both be so sweet and tender. But then in the twinkling of an eye, talkative twin lashes out without warning, or less talking twin throws a mega tantrum.

Here, she was so SO excited about the watermelon juice they were making “without a mommy watching us.” That request didn’t go far! I ended up doing more than three quarters of the work anyway. He he.

And violent twin can be so gentle.

Life is like that. For all of us. But before this, my highs and lows weren’t so dramatic,