Sweet Sister

Haha. Each time she or their brother do this infamous autism smile, I remember one of the diagnostic questions I had to answer for Amarissa, “When she smiles, does she have an unusual expression or way to smile?” No, she doesn’t. But I sure know who does!

She was so sweet just a few minutes ago. Her sister fell asleep in the car. She’d had a painful night. But this being our worried Twin A, she woke Ammy to ask, “Are you ok? Are you feeling alright?”☺️

If she still can’t bear weight at the end of the week, she will go back to the doctor to take x-ray pictures to see if she broke her patella or not. She had jumped and then fell awkwardly onto her knee. The swelling and extreme pain came a day after the fall. By the afternoon, after sitting in the car, she couldn’t get out. She was in so much pain her big sister asked if she wanted them to find a wheelchair. (They were at the mall.)

So here we are today. If it ain’t one thing, it’s two other things! I’m tired. Honestly, sometimes I get tired of being the only nurse and medicine dispenser in the family. Poor girl now needs anti inflammatory meds three times a day. I congratulated myself this past week for having given our ten year old his night time antipsychotic meds every single night instead of forgetting a dose. Now I have extra meds to dispense. And I haven’t yet mixed up Twin B’s cup of meds that I syringe feed her (10ml syringe) every few minutes till the cup is empty. BUT, I’ve given them all their ADHD, antipsychotics, allergy, mood stabilizer, anti anxiety and anti depressant meds thus far. That has to count!

It’s an odd life. Constantly tense. Wondering if there’s a supplement or medication I forgot to give. I realized last night when my chest was wheezing that I haven’t used my asthma pump this week.🤦🏾‍♀️

We need to have more hours during the day. I can’t balance all the teaching, special needs life and my own health in the time I have each day. Perhaps my days alone could be longer in case you want a normal 24 hours.😅

The doctor tried to drain the blood out of my girl’s knee but couldn’t find the pocket (He wasn’t using ultrasound but we can all see where it has pooled as it’s swollen there. It was painful! I know the feeling from when the doctor tried to inject with a thick needle but couldn’t find any space between my shoulder joint no matter where he’d try and prick. The taking the needle out, then putting it back in again is horrible. You feel it hitting your bone…

She must be off her leg this week. He’s not happy with her having low registration. He’s worried she can’t tell or feel the symptoms of a break. Keep her off it!? We all know her! She was taking bandages off after surgery and opening up her post op wounds, moving, bending, poking wound and tearing it open. So I told her to use my walking frame and he asked if she has a brace- we do but she’s a bit chubby for it. It’s a size medium adult that I bought yesterday. I told her to use the frame because she was already hobbling around as soon as she got back from the doctor! When I caught her standing by the fridge, she lifted the injured leg and bent her knee behind her.

Yeah, we have an interesting week ahead! Join us next time, for your next episode of ‘Special’ in South Africa!😉I know Flydah likes knowing the nitty gritty. But I’m also soo aware of the American SDA autism mom whose comment I have mentioned before. It was by knowing I can’t take the kiddies to church and I knew God understood, that she gave herself grace for not being able to “fellowship with the brethren.”

Of course, we could ask why none of the brethren ever ask if some can come fellowship with US, but we won’t go there. I just grew up with my parents doing that. They always visited the shut ins. Even if we cannot have you worship with us, just having someone offer to, would show us we matter. Ok, I really won’t go there! Bye!